Posting this here as it’s a funny comparison to the current shitstorm what is going on. REAL LONG POST.. sorry !!
About 3/4 years ago I moved to Wales. There was a bit of a late Summer, about end of September, and I went for a walk with my mrs, we walked from the west of Cardiff down to Barry; down a lot of fields, country lanes etc.
Spent a full day there, came back home and the morning after, I was putting on my shoes/socks when I noticed a little fleck of something attached to the top of my foot; I mentioned ‘that’s weird, it’s like a tiny spider or something’ and managed to remove it, it had been lodged into my foot biting me, but wasn’t painful or anything, and I didn’t think anything of it.
a couple of days later, I got a funny rash/mark around the area, the classic ‘bulls eye’ rash when bitten by a tick carrying Lyme disease, but coming from a big city in Northern England I had no idea what a tick even was or ever seen one, I just put it down as a must have been a nasty bite off the ‘spider’ lmao
Now about 2 weeks later I came down with the most insane shivering, shaking, chills and flushes ever.. I remember having to go lay in bed feeling horrific, like I had a bad flu coming on. My head was banging, I spent the next week or so in the same position, I was so dizzy I could not go anywhere, stand up for long periods of time. I lost a stone and a half over about 10 days. Could not keep food down; it really was like having flu!
so the point of why I am posting this. I went to my doctor, a few weeks later, as the dizziness would not stop and I started to get tingling, neurological problems, these weird sensations all the time. He suggested it could be an ear infection; I thought whatever, non the wiser I just took the tablets prescribed which helped the dizziness a bit, but everything else was still off.
Strangely some time about a month later, I happened to see a news feature about Lyme disease. A picture of the rash etc came on, started going through the symptoms on TV; I was sat with my mrs and just had a total ‘holy shit’ moment as I had the exact same rash, onset of symptoms, remembered what had bitten me and the fact I’d been walking through a hotspot area of these ticks. I thought surely, this must be what’s done me in!
now anyone who knows anyone who has ever had this disease; or has had it themself; you might know about how shocking the NHS handles, diagnoses, treats people with it; effectively stating that it doesn’t exist in the UK, or that not many people get it, or you don’t get ticks in the UK etc.. heard them all.
I presented to my doctor and stated how I’d been feeling, how I couldn’t place what had caused it, then realised about the bite I’d had and what had actually been attached to me must have been a tick, because of the target rash I’d received round the bite and the onset of all my symptoms. Immediately he tried to shake it off, stating that it was very rare to catch this in the UK, and it was highly unlikely anything was wrong with me. Instead he prescribed me more anti-dizziness tablets which was not helping my fatigue, zoning out, tingling etc.
i learned to just cope with the symptoms for a while; but I was just so drained all the time and I couldn’t do anything I used to do, I was young and loved going out drinking, going to play poker, going to house parties. I felt robbed of my life because I was just so drained and could not even last getting out of bed for more than maybe an hour or so.
as the months went on, my condition got worse; I would get horrible tingling, hot and cold flushes, I could not bear light at all; if I went outside I needed sunglasses even if it wasn’t sunny as it was just so hard to keep my eyes open, it hurt so much. One night I was out playing a game of cards down the local casino. I was about 3 hands in when my body was just totally on fire. The left hand side of my face just totally dropped and I just got up, grabbed all my chips and pocketed them; I said to my mrs we need to get out now, it was like a total panic attack. I felt like I was dying, I was so dizzy, my body was tingling everywhere, and all I remember is getting outside and that was it; I woke up and had an ambulance pulled up by me in the middle of the city. I was so pale, my face was dropping, I was still tingling in my hands.
they started interrogating me saying what had I taken, what was I doing, asking all these questions. I told them I didn’t take drugs, I didn’t even drink anymore, I just felt this horrific feeling and had to get out and that was that. My mrs was terrified, she knew something was wrong.
we spent 3 hours at the hospital where I started to feel a bit better; it always came in waves, but never this bad. Before which a nurse came and saw me, saying all my blood tests were fine, I had a CT scan of my head and all was okay; they said I had just fainted because I stood up too fast and these things happen, and I could go home. Of course I knew that was bollocks! I was going to pass out well before getting up. How did it explain everything else I was feeling??
Now I didn’t have an episode like that again til a few months later. I was back home in Yorkshire and I had the same sort of episode as before. Stood outside, then bang, it was like my body just totally shut down on me again. So there I was; on the way to hospital again, getting asked about what I’d been doing, if I’d taken anything, if I’d had any big stress going on. They were totally clueless as to what was happening to me.
i saw a doctor in the hospital, and I explained to her I knew exactly what was wrong, but every time I saw a doctor they just dismissed it as an ear infection, or a viral infection, they wouldn’t test me and they wouldn’t prescribe me anything that would help. She said to me it was ‘textbook Lyme disease’ and I needed to get to the doctors ASAP to be prescribed antibiotics before I ended up with permanent neurological damage, given how long it had been going on for. It was like a sigh of relief, somebody who listened to me.
i went to the doctors, and they prescribed me antibiotics for 2 weeks and organised a test for me to be sent to the famous Porton Down. I received a phone call a couple of weeks later. The antibiotics had helped massively. It was like my body was just going on a total detox. I was getting my energy back, the tingling and twitching in my face was stopping, the dizziness was gone. I received a call to see the doctor.
i went and saw him, and he showed me the results, that I had a certain level of antibodies in my system and I had a positive result; all I got was “this can be false though; it’s still hardly existent in this country; you might not have it, we need to book you in for more scans”. So I was still even after getting a positive result back, getting pushbacks! But he agreed to prescribe me more antibiotics.
i finished up a 4 week course and it was like having all my life back again; I could go to work, I could go out drinking, I could see all my friends, do all the hobbies I used to enjoy again! I was over the moon and mentioned I never wanted to go through all that shit again. It was horrific, like I lost so much of my life. And I was pissed off at the way it had been handled by the NHS, if it were not for the words of the doctor at the hospital, I think I would have been permanently fucked.
now sorry for the huge ass back story; how does all this link in with Covid-19?
1) I was told I could not possibly have this disease, despite testing positive, despite responding to antibiotics, despite showing all the classic symptoms of this disease
2) I was denied the correct treatment for months
3) they were INSISTENT that the test is inaccurate and that the positive was most likely a false result
now contrast this to what is happening now, and why I have no fucking faith at all in this health system;
1) People are told to self-isolate immediately and take all these measures when they present symptoms that are not even unique to Covid-19! Loss of smell? Cough? Fever? It’s Covid, straight away, no test required, just get yourself isolated. If I had these symptoms and tried to argue it wasn’t Covid, imagine the fucking pushback!
2) people are slapped straight onto ventilators or whatever for their breathing issues, it could be something entirely different, but there’s just no proving or investigation; it’s just straight YOU HAVE COVID
3) we all know the test for corona is bullshit and throws out all sorts of results; it is inaccurate and not designed to diagnose Covid-19; so even if you test negative for Covid they will make you isolate ‘just in case’! Well there was never any ‘just incase’ for Lyme disease, it took months to even convince these jokers to test me in the first place!! Now it’s ‘test test test’ (to push all the bullshit numbers up further)
I am sure there may be people here who have had similar experiences or may have gone through the same as me! but looking at the points I have raised, isn’t it a funny contrast and a total joke how the health system operates! There is just no consistency, it seems these ‘doctors’ and ‘nurses’ the majority of them just follow whatever agenda is pushed out by those from above! there is hardly any real medical knowledge out there!
and then it’s a wonder why I have no faith in the NHS.
thanks for the read... all comments welcome.. let me know if you have had the same or similar situation/s...